This page is a reminder of what you were taught in the hospital. It does not replace hands-on training, and the individual instructions from your doctor or nurse always come first.
Why catheterization?
When the bladder does not empty fully on its own, for example in neurogenic bladder, it is emptied regularly with a thin catheter. The catheter is passed through the urethra into the bladder and removed once the urine has drained. In babies with spina bifida, catheterization is usually started as soon as possible after birth.
Clean, not sterile
For long-term intermittent catheterization at home, the clean technique you were taught is enough; in hospital, the way a catheter is placed depends on the procedure and on infection-control rules. The clean technique means:
- wash your hands with soap and water and dry them well before and after each catheterization,
- clean the genital area the way you were taught: in girls, separate the labia and wipe from top to bottom; in boys, start at the opening of the urethra and work outward,
- use a new catheter each time; reuse a catheter only if it is a special reusable type and a nurse has shown you how,
- unless the catheter is hydrophilic, use a water-soluble lubricating gel.
Lay a baby on their back. An older child is usually most comfortable sitting on the toilet.
How many times a day?
Your doctor sets the number and timing of catheterizations. If your child cannot pee at all, it is usually 4–6 times a day; if your child can partly pee on their own, often 1–3 times a day. Do not change the schedule yourself. During a urinary tract infection, the doctor may advise catheterizing more often for a while.
Constipation makes it harder to pass the catheter. Regular bowel emptying is part of bladder care.
Daycare and school
- Plan training for daycare or school staff in advance with your doctor or nurse.
- Agree on a clean, discreet place to store catheters and supplies.
- Keep the procedure as quick and simple as possible, without cutting corners on safety, so your child misses less class time.
- If your child has spina bifida, tell the teachers about the risk of latex allergy.
Latex allergy
Children with spina bifida have a high risk of latex allergy. From infancy, avoid latex catheters, gloves and other latex medical products, as well as rubber balloons. A reaction can be mild (skin irritation, rash, hives, itchy eyes, sneezing) or severe (widespread hives, wheezing, coughing, swelling around the eyes, vomiting). For a severe reaction, call emergency services right away.
Problems and what to do
- The catheter will not go in. Do not force it. Ask your child to take a deep breath. Change their position, hold the catheter with light pressure and wait 1–2 minutes: the sphincter often relaxes. If it still will not pass, call your doctor or nurse without waiting for the next scheduled catheterization.
- Blood in the urine or on the catheter. If bleeding is heavy, does not stop or keeps coming back, see your doctor: persistent bleeding can be a sign of infection.
- Cloudy, bad-smelling urine. If it comes with fever or pain, there may be an infection: contact your doctor as soon as possible.
- Germs in the urine without symptoms. This is common in children who use a catheter and usually does not need treatment. Give antibiotics only if your doctor prescribes them.
When to seek urgent care
If any of the following is present, do not wait for a routine appointment: call the doctor or go to the nearest emergency department.
- Fever (a high temperature)
- Being unable to pass the catheter into the bladder despite the steps you were taught
- Heavy bleeding or bleeding that does not stop
- Cloudy, bad-smelling urine together with fever or pain
- A severe allergic reaction to latex: widespread hives, wheezing, swelling around the eyes (call emergency services right away)
Call your local emergency number (112 in Europe, 911 in North America)
Note for pediatricians and family doctors
In newborns with spina bifida, clean intermittent catheterization should be started as soon as possible after birth (EAU/ESPU). When catheterization is the only means of emptying, it is done on average 4–6 times a day; when spontaneous voiding is preserved, usually 1–3 times a day; the schedule is individualized. Asymptomatic bacteriuria is seen in 42–76% of children who catheterize; the ESPU-Nurses guideline recommends treating only symptomatic UTIs. Persistent urethral bleeding can indicate a UTI. Severe constipation makes catheter insertion harder, so bowel function should be evaluated before starting catheterization. Children with spina bifida are at high risk of latex allergy; latex-containing medical products, including catheters, should be avoided from infancy.
What happens at the visit?
- We give parents, and the child when appropriate, hands-on training; the first catheterizations are done under a nurse's supervision.
- We choose the catheter type and size and the catheterization schedule for each child.
- At follow-up visits, we check the kidneys, the bladder and bowel function.
Frequently asked questions
Does it hurt?
There can be some discomfort when the catheter goes in and comes out. Extra lubricant or a different type or size of catheter often helps. If the pain is new or getting worse, a urinary tract infection may be the cause; contact your doctor.
Germs were found in the urine test. Are antibiotics needed?
Children who use a catheter often have germs in their urine without any symptoms. If there is no fever, pain or other complaint, this usually does not need treatment. Give antibiotics only if your doctor says to.
What about school?
Daycare or school staff can be taught to catheterize your child. Agree on a clean, discreet place to store the catheters. As children grow, they learn to catheterize themselves.
Related topics
- Neurogenic bladderBladder problems in spina bifida and spinal cord conditionsCondition
- Urinary tract infectionBladder infection, cystitisCondition
- UrodynamicsBladder pressure measurement, cystometryTest
- Posterior urethral valvesCongenital membrane in the urethra, PUVCondition
- Transitional urology: from adolescence to adult careFor doctors
- Neurogenic bladder: the child with spina bifidaFor doctors
Sources
- Cobussen-Boekhorst H et al. Guidelines for intermittent catheterisation in children. ESPU-Nurses, 2016 (online edition).
- Stein R et al. EAU/ESPU guidelines on the management of neurogenic bladder in children and adolescent part I: diagnostics and conservative treatment. Neurourol Urodyn, 2019.
- The Royal Children's Hospital Melbourne. Teaching and supporting clean intermittent catheterisation for parents and children, 2023.
- Alder Hey Children's NHS Foundation Trust. Clean intermittent catheterisation: information for parents and carers.
- Spina Bifida Association. Guidelines for the care of people with spina bifida: latex and latex allergy, 2023.
This information is for educational purposes and does not replace medical advice. Decisions about your child’s treatment are made with the doctor after an examination.
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